From DNA sequences stored on computer databases to archived forensic samples and biomedical records, bioinformation comes in many forms. Its unique provenance dash; the fact that it is Csquo;minedtsquo; from the very fabric of the human body wdash; makes it a mercurial resource; one that no one seemingly owns, but in which many have deeply vested interests.
Who has the right to exploit and benefit from bioinformation? The individual or community from whom it was derived? The scientists and technicians who make its extraction both possible and meaningful or the commercial and political interests which fund this work? Who is excluded or even at risk from its commercialisation? And what threats and opportunities might the generation of esquo;Big Bioinformational Databsquo; raise?
In this groundbreaking book, authors Bronwyn Parry and Beth Greenhough explore the complex economic, social and political questions arising from the creation and use of bioinformation. Drawing on a range of highly topical cases, including the commercialization of human sequence data; the forensic use of retained bioinformation; biobanking and genealogical research, they show how demand for this resource has grown significantly driving a burgeoning but often highly controversial global economy in bioinformation. But, they argue, change is afoot as new models emerge that challenge the ethos of privatisation by creating instead a dynamic open source ssquo;bioinformational commonsrsquo; available for all future generations.
- Publication Date:
- 15 / 09 / 2017
- 149 x 209 x 15mm